Ashleigh, Krissy, Brady and Stacey
L-R: Ashleigh, Krissy, Brady and Stacey

Welcome to BrAshA-T

BrAshA-T Ataxia-Telangiectasia Limited organisation was founded in 2007 by a Brisbane (Australia) family after two of their young children, Brady 6 and Ashleigh 5, were diagnosed with A-T.

Determined to do something about their situation, parents Sean and Krissy created the organisation called BrAshA-T to raise money to support research into finding a cure and as a means for creating a support network for other families dealing with A-T.

What We've Achieved So Far

Since getting up and running in late 2007, we are starting to bear the fruits of our efforts with considerable progress towards achieving our long-term goals:

  • Created a support network for families around Australia affected by A-T who are now in contact with each other as well as the foundation.

  • Established a National A-T Clinic, supported by the Queensland State Government, QIMR and the Brisbane Royal Childrens' Hospital, to provide a team of expert doctors who will see every child in Australia diagnosed with A-T.

    Specialist doctors will be in attendance from Neurology, Immunology, Respiratory, Oncology, Genetics and Psychology along with a Pediatrician on board to oversee general care. Also available will be therapists from Allied Health - speech, OT & physio. These clinics will take place three times a year in March, July and October.

  • Welcomed on board Joanna McCosker as the Clinical Coordinator for the National A-T Clinic.

  • Established a scholarship to support post-graduate student, Romal Stewart, to obtain a first class Honour’s degree through the University of Southern Queensland.

    Romal conducted his studies at the Queensland Institute of Medical Research under the supervision of Professors Martin Lavin and Mike Kotig and Dr Sergei Kozlov.

    His project was designed to investigate how the ATM protein (defective in ataxia-telangiectasia) is activated with a view to understanding how this protein protects against cancer and neurodegenerative disease.

  • Committed to provide funding support for two PhD Scholarships commencing in 2010.

  • Ongoing commitment to A-T Research Programs at QIMR.

  • Committed funding to the Scientific Research Meeting - ATW2010 in Los Angeles in April 2010.

  • Raised significant funds through holding events such as Charity Dinners, Movie Nights, Golf Days, Membership Drives, Merchandise Sales, etc.

How to Support BrAshA-T

BrAshA-T is desperately trying to raise funds through donations (100% tax deductable), fundraising events, merchandise, sponsorship and annual memberships to the organisation. Our goal is to generate 1,000 annual memberships at $10 each which equates to $10,000 per year in valuable funding to try and find a cure for this devastating disease.

Fundraisers Merchandise Membership Facebook

News

Rose Creek Wine Festival

Rose Creek Estate Wine Festival

Join us at the Rose Creek Estate Wine Festival (Victoria) on Sunday the 29th of August for wine, cheese and olive oil tastings, wood-fired pizzas, pastas, BBQ and gypsy Jazz.

Click here for more details.

Super Cheap Auto, BCF & Gold Cross Cycles August Promotion to Support A-T Research

Supercheap Auto

From August 1st please go into any Super Cheap Auto, BCF or Gold Cross Cycle store and purchase a BrAshA-T merchandise item to support A-T Research! Every $ raised goes to BrAshA-T's research fund. Thank you Super Cheap Auto Group.

Click here for more details.

Upcoming National A-T Clinic

Following on from successful National A-T Clinics in March and July, another clinic will be held on 14/15 October.

Golf Day 9 Nov 2010
North Lakes Logo

The second annual BrAshA-T Golf Day will be held on Tuesday the 9th of November at North Lakes.

63 marathons in 63 days!

Most of us can only dream of running a marathon but imagine running 63 of them in 63 days pushing a wheelchair!

FEAT

This is exactly what Tim Borland did for A-T Research.

So inspiring were his efforts that a movie called, FEAT, has been made and is now screening in the US.

2009/10 Calendar

A-T Calendar

We have put together an 18-month calendar (Jul 2009 - Dec 2010) featuring A-T families.

We are very proud of the end product and you can purchase a calendar for the reduced price of $10 each.