BrAshA-T Ataxia-Telangiectasia Limited organisation was founded in 2007 by a Brisbane (Australia) family after two of their young children, Brady 9 and Ashleigh 8, were diagnosed with A-T.
Determined to do something about their situation, parents Sean and Krissy created the organisation called BrAshA-T to raise money to support research into finding a cure and as a means for creating a support network for other families dealing with A-T.
BrAshA-T is desperately trying to raise funds through donations (100% tax deductable), fundraising events, merchandise and sponsorship to support research into finding a cure for this devastating disease.
Since getting up and running in late 2007, we are starting to bear the fruits of our efforts with considerable progress towards achieving our long-term goals:
It is with tremendous sadness that we announce the passing of Sean Roebig, one of BrAshA-T's founding members, loving husband to Krissy and devoted father to Josh, Stacey, Brady and Ashleigh.
I wish we could have found a cure for A-T in Sean's life time but I will continue to push ahead for a cure in Brady and Ashleigh's life time. BrAshA-T is a legacy that Sean has left behind to be continued...
Life is going to be very hard
without Sean in it.
BUT as hard as all of these things will be it will happen because Sean had faith in me from the day he met me. He loved me. We will be ok...Krissy Roebig
Stay up-to-date with upcoming fundraisers and advances in A-T Research.
Click here to become a BrAshA-T Supporter.
Team BrAshA-T has joined Suncorp Bank's runPositive program by entering the Gold Coast Airport Marathon on the 6/7th of July 2013!
By entering the race and joining Suncorp Bank's runPositive program you have a chance to win $10,000!
The runPositive program supports wellbeing and positivity within the community by giving runners participating in sponsored runPositive events personalised printed singlets expressing why they runPositive.
By sharing the reasons why they runPositive, all participants of the Gold Coast Airport Marathon can enter Suncorp Bank's runPositive competition for the chance to win a $10,000 Suncorp Bank Everyday Basics account.
Researchers at the University of California, Los Angeles (UCLA) just announced that they have successfully used induced pluripotent stem cells (iPSCs) to create the first disease-in-a-dish model for A-T. Read more...
The Brisbane Royal Children's Hospital is considering a new model for the A-T Clinics.
The current proposal is for a September clinic for Queensland children and seeing all doctors in just the one day. Another separate one-day clinic would then be held for interstate children around October.
We will keep you posted as more news comes to hand.
Click here to download a copy of the latest A-T Clinic Newsletter (Summer 2013).
The 2013 International A-T Workshop will bring together a broad spectrum of scientists and clinicians from all over the world including a contingent from Brisbane headed-up by Dr Martin Lavin.
This Workshop is held every two years and is one of the most important events on the research calendar.
These Workshops involve a tremendous amount of organisation and funding and with the next Workshop scheduled for Brisbane in 2015, this is currently one of our major fundraising goals.
An interesting story by Janelle Miles (Brisbane's Courier-Mail on the 6th of October 2012) about the recent encouraging advances in A-T research, click here to read it. Many thanks to those who donated to BrAshA-T after reading the article.
Thank-you to everyone who attended the Brisbane BrAshA-T Gala Charity Dinner and Memorabilia Auction held at the Eatons Hill Hotel & Function Centre on the 13th of October 2012.
Many thanks also to all of you who donated prizes. View the photos.
Researchers at UQ's Australian Institute for Bioengineering and Nanotechnology (AIBN) are a step closer to understanding and combating the degenerative brain disease ataxia-telangiectasia. More...
The International A-T Workshop has been held every few years since 1980 in different parts of the world. The meeting is unique in that it focuses on the various facets of A-T, the disease, and ATM function.
The 14th International Workshop on A-T was held in New Delhi on February 7-11, 2012. BrAshA-T supported this very important event (as it has in the past in Japan in 2008 and LA in 2010) by attending the workshop and contributing towards its operational costs.
You can learn more about this workshop by reading the reports submitted by Krissy Roebig and Martin Lavin on our Research page.
A nice story by Janelle Miles in Brisbane's Courier-Mail on the 12th of November 2011 - click here to read it. Many thanks to those who donated to BrAshA-T after reading the article.